Thank you for sharing that. I have a friend who is going through it right now, but my understanding it was from protein or grains? While he has had grains, I pulled that and he’s only eating fruits and veggies. Regardless, even if this isn’t our answer it may be someone else’s answer so thank you for sharing it!!

I pray that they are able to get the help they need with their little boy. I can only imagine how stressful that is. Thank you!

My cousins went and did a Google search for rice cereal and projectile vomiting and found a YouTube video for a child with the same symptoms. They told the doctor when they went for the GI again and he blamed my cousin and said she was not watching what she was eating while nursing Gavin. He is two now and he still can not have solid food, his nourishment is a special formula. We are about to publish a post with a paypal donation button to get him to a childrens hospital in Denver so he can trial foods. He has to be in a hospital for this because of the reactions that can be caused from the foods.

I don’t tell you this to scare you, but most doctors are unaware of #FPIES and misdiagnose children. All I know is what my family is going through and it breaks my heart there are to many of these cases.

Go here thefpiesfoundation.org and then here iaffpe.org

I hope I am wrong and all I have done is brought awareness of #FPIES to others who don’t know about it and eliminated one thing that is wrong with precious baby D and that gorgeous smile of his.

Thank you Kerri – it is hard. We have a few tests to schedule, so hopefully that will help get us some answers!